I'm still learning how to live in this new body. Ever since my bone marrow transplant, I've struggled with chronic fatigue and a misfiring immune system. I've had to learn to ration my energy, to move more slowly, to accept that sometimes my body simply will not sync up with what it is I want to do. I can pick two things I want to do well each day, whether it's work or exercise or seeing friends. Then I rest, or else I pay the price.
On Saturday I marched with my mother and a group of friends in New York City. It took me two days to regain my strength, and it was worth every second of it. I often feel pressure to perform survivorship and illness well, but we do ourselves and others a disservice by glossing over the day-to-day challenges.